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Showing posts from March, 2018

Thank You Once Again & March on the Hill!

A couple of months ago, I received an email from Kellie Fleeman, head of the Greater Illinois Chapter of the Cystic Fibrosis Foundation (CFF), who let me know  that they had received another amazing donation in honor of Alex.  We have some very generous patrons out there who must love us very much because over the past few years, they have anonymously given large sums of money to the CFF in Alex’s name. Whoever you are, know that we love you and thank you from the depth of our hearts. Kellie also asked if I’d be interested in attending the Cystic Fibrosis Foundation’s annual March on the Hill in Washington D.C. as a representative of the 16 th district of Illinois. Normally, this type of event would be WAY outside my comfort zone, but strangely enough my initial reaction was an excited YES. After all, sharing knowledge of Cystic Fibrosis and the needs of the CF community is right up my alley. You might even call it my super power. 😉 So in just about 10 days, I’m channeling