Thank You Once Again & March on the Hill!

A couple of months ago, I received an email from Kellie Fleeman, head of the Greater Illinois Chapter of the Cystic Fibrosis Foundation (CFF), who let me know that they had received another amazing donation in honor of Alex. We have some very generous patrons out there who must love us very much because over the past few years, they have anonymously given large sums of money to the CFF in Alex’s name. Whoever you are, know that we love you and thank you from the depth of our hearts.
Kellie also asked if I’d be interested in attending the Cystic Fibrosis Foundation’s annual March on the Hill in Washington D.C. as a representative of the 16th district of Illinois. Normally, this type of event would be WAY outside my comfort zone, but strangely enough my initial reaction was an excited YES. After all, sharing knowledge of Cystic Fibrosis and the needs of the CF community is right up my alley. You might even call it my super power. 😉
So in just about 10 days, I’m channeling my inner Wonder…

Be a Badass in Every Season! A tribute to my Grandma McLeese


A Thank You & An Update


A Surprise and a Thank You

Today I found a surprise waiting in my inbox.

The surprise was in the form of an email written by Kellie, who is the Associate Executive Director of the Peoria branch of the Greater Illinois Chapter of the Cystic Fibrosis Foundation. I have known Kellie since I participated in my first Great Strides walk back in 2004 when a great group of friends decided to get together and raise money for Alex and Cystic Fibrosis. They called our team Alex's Angels, and I was so surprised and touched by their compassion, I cried when I found out about it. That was one of the first of many acts of kindness we experienced after Alex was diagnosed.

Since that first fundraising experience, I've been amazed and humbled by the generosity of our family, friends and strangers who have donated money repeatedly over the years to help fund research, care centers, and the creation of new drugs--all of which help to better the lives of those living with this disease. And the ultimate hope? A CURE. In my …

A Story

Once again, my goal to become a better blogger has failed. Over the past few months, several post ideas have come to mind, but I keep filing them away for a day when I have more time.

Time to think. Time to process. Time to lose myself in words.

Well. Here it is. 12:01 AM. I'm sitting here at my computer in an almost quiet house. I hear the soft hum of the computer, the creaks of my house settling into the night, and the occasional car motoring down our street. And...snoring. From two rooms away. But don't tell my husband I told you so.

I want to share a story with you, dear reader. And this story, I must confess, makes me very sad.

A few weeks ago, my husband (the snorer) got up as he usually does and came downstairs to watch the news. As he was enjoying a cup of freshly brewed Folgers, a news story caught his interest. So worthy was this news story, he re-wound the broadcast and recorded it for me (oh, the modern convenience of DVR). He was quite excited to tell me about it…
Mom(me) Moments
I'm a mom. And I've discovered there are only two places a mom can really think. Number One: in the shower. Number Two: in the car. This is assuming the mom is alone in both locations. Because being a mom means that no place is one's own. Not even the shower. Small fists bang on bathroom doors, 8 year olds waltz in to demand "Where's my library book?" and "I can't find my shoes!" followed by "Yes, I looked!" Bathroom time is the place to learn about your child's latest LEGO creation and to discover which level of Wii Bowling he has just completed. And if you're as fortunate as me (and you have only one bathroom in the house)...well let's just say, my bathroom can be a very SHARED space!

But sometimes, even a mom finds a moment to shower in peace. And T-H-I-N-K. This post revolves around an idea I had several months ago while doing just that. I had been thinking about how I had neglected my blog. My poor, sad…

Crazy Days Part 1: The Morning Mad Dash

I’m attempting to get back on the blogging track. When I started this blog, I really felt inspired to share my stories. And then the lazy days of summer turned into the busy days of fall i.e. the school year. My days go something like this:

The Morning Mad Dash

6:10 AM …beep, beep, beep,beep. The dreaded alarm. Once upon a time, I popped out of bed at that sound and happily began my day. That was when my worst fear was missing the bus. Nowadays, I am the bus, and I’m happy if I get my son to school before the janitor locks the doors. For the record, we’ve only been officially tardy twice in the past year and a half. That requires signing in at the office and does NOT make my anxiety-prone son a happy camper. On those days, I felt like the worst mom ever. If only I could harness that guilt and train it to slap me in the face every time I reached for the snooze button, maybe I’d snooze less often.

The goal is to be up and moving by 6:30 AM, so that we can get Alex’s treatments going. Fortu…